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Other Eye Conditions

How to Get a Second Opinion and a Referral Letter

A second opinion means asking a doctor other than your current primary doctor (a specialist) for an opinion about the diagnosis or treatment plan. It is a system that supports decision-making based on enough information1).

It is not a sign of distrust in the primary doctor, but a process for making decisions based on enough information. As a result of a second opinion, the primary doctor’s plan is often supported, and reports show that patients feel more reassured and become more willing to take part in their treatment5).

Medical fee evaluations and usage surveys have been carried out1), and university hospitals and specialized hospitals are increasingly setting up second-opinion clinics.

What is a referral letter (medical information letter)?

Section titled “What is a referral letter (medical information letter)?”

A referral letter (medical information letter) is a document in which the primary doctor records the patient’s diagnosis, treatment history, test data, and medications. It is used to help care continue smoothly when visiting another medical institution.

Q Is a second opinion different from transferring to another hospital?
A

A second opinion is meant to hear another opinion, and it is different from transferring care (changing medical institutions to receive treatment). Even after getting a second opinion, there is still plenty of room to continue treatment with the original primary doctor. The real purpose is to use it when you want to refer to another specialist’s opinion.

2. Situations in ophthalmology where a second opinion is especially useful

Section titled “2. Situations in ophthalmology where a second opinion is especially useful”

Deciding whether surgery is indicated

Cataract surgery: whether the timing is appropriate, multifocal IOL or monofocal IOL, and whether astigmatism correction is needed

Retinal detachment: choosing the procedure, scleral buckling vs. vitrectomy

Glaucoma: the limits of eye drops and when to consider surgery (trabeculectomy, MIGS, etc.)

Strabismus (children): the right timing and method for surgery

Before surgery that has a major impact on visual prognosis, it is reasonable to hear opinions from several specialists.

Intractable and rare diseases

Uveitis: there are many possible causes (sarcoidosis, Behçet’s disease, Vogt-Koyanagi-Harada disease, etc.), so evaluation at a specialized center is useful

Treatment-resistant age-related macular degeneration and diabetic macular edema: considering switching anti-VEGF drugs or steroid treatment

Hereditary retinal diseases (such as retinitis pigmentosa): consulting a specialized center for genetic testing and genetic counseling

For rare diseases where there is no specialist in the region, a second opinion from a university hospital or specialty center can sometimes become a turning point in diagnosis and treatment8).

After a serious diagnosis

Eye tumors: In conditions such as choroidal melanoma and retinoblastoma, it is especially important to confirm treatment options such as radiotherapy and enucleation

Conditions directly affecting visual prognosis: When receiving serious news, hearing another specialist’s opinion strengthens the basis for decision-making

Reports suggest that a second opinion can reduce patient anxiety and lead to more active involvement in treatment6).

Q When should you get a second opinion in ophthalmology?
A

The main typical situations are the following three: ① when you are unsure whether surgery is needed or which surgical method to choose, ② when you are not confident about the diagnosis or treatment plan for a refractory or rare disease, and ③ when you receive a serious diagnosis such as an eye tumor. When questions such as “Is surgery really necessary?” or “Is there another treatment?” come to mind, that is a sign to consider a visit.

  • Say frankly, “I would like to hear another specialist’s opinion as well.”
  • Ask your attending physician to cooperate with providing medical information
  • Example phrasing: “It’s not that I’m dissatisfied with your treatment plan, but I would like to also consider another doctor’s opinion about the decision on surgery. Could I ask you for a referral letter?”

Step 2: Prepare referral letter and required documents

Section titled “Step 2: Prepare referral letter and required documents”
  • Medical information letter (referral letter): Ask your primary doctor to prepare it (usually takes about 1–2 weeks).
  • Copies of test data: Fundus photographs, OCT images, visual field test results, fluorescein angiography (if available)
  • Medication notebook: List of your current prescribed medicines
  • Health insurance card (for a usual referral visit)
  • Second-opinion clinic at a university hospital or specialty hospital
  • Search for certified specialists of the Japanese Ophthalmological Society: searchable on the Japanese Ophthalmological Society website2)
  • Disease-specific specialty centers (retina, glaucoma, tumors, etc.)
  • Bring and present all of your materials
  • Organize specific questions in advance (for example, ‘Is the diagnosis appropriate?’, ‘Are there other treatment options?’, ‘What is the prognosis?’)
  • Take notes (if you plan to record, get permission first)
  • Having someone with you can help prevent you from missing information

Step 5: Report back to your regular doctor and make the final decision

Section titled “Step 5: Report back to your regular doctor and make the final decision”
  • Tell your regular doctor the results of the second opinion
  • The patient chooses the final treatment plan based on the regular doctor’s explanation and the second opinion
  • If you want to transfer to another hospital, tell your regular doctor that as well

4. About the referral letter (medical information letter)

Section titled “4. About the referral letter (medical information letter)”
  • Basic patient information (name, date of birth, insurance information)
  • Current diagnosis
  • Summary of the treatment course
  • Current medications
  • Summary of test data (visual acuity, intraocular pressure, OCT findings, visual field test results, etc.)
  • Purpose of the referral

How to obtain the referral letter and the cost

Section titled “How to obtain the referral letter and the cost”
  • Ask your attending physician to prepare it
  • Under insurance-covered care, the medical information provision fee (250 points) is billed, and with a 30% copay the out-of-pocket cost is about 750 yen3)
  • A separate copying fee may be charged for test images (fundus photos, OCT, etc.)

Differences depending on whether you have a referral letter

Section titled “Differences depending on whether you have a referral letter”
Visit typeReferral letterCostNotes
Second-opinion clinicRequiredSelf-pay: about 10,000 to 30,000 yenNo tests, opinion only
Standard referral visit (insured medical care)RequiredInsured medical care + test feesExamination and tests are also performed
First visit without a referral letter to a university hospital, etc.NoneAdditional fee of 7,000 yen or more + insured medical careRevised in October 2024
Direct visit to a small or medium clinicNot requiredInsured medical careThe level of specialization is more limited than at a university hospital
Q Can I get a second opinion without a referral letter?
A

At small and medium-sized ophthalmology clinics, you can be seen even without a referral letter. However, at university hospitals and designated functional hospitals, a separate selected medical care fee applies for a first visit without a referral letter (from October 2024, 7,000 yen or more in medical care)3). With a referral letter, the course of treatment is communicated accurately and a more efficient consultation is possible, so bringing one is strongly recommended when using a second opinion clinic.

A second opinion clinic is for the purpose of “hearing an opinion,” and is generally not covered by insurance3).

  • Estimated cost: about 10,000 to 30,000 yen for 30 minutes to 1 hour (varies by facility)
  • Tests are generally not performed (the opinion is based on the materials you bring)
  • Many are by appointment. Check the required documents, fees, and time needed in advance

If you are visiting for a “consultation and examination at the referral destination” rather than a second opinion, it will be covered by insurance.

  • In addition to the initial or follow-up consultation fee, various test fees will be charged
  • If you have a first visit without a referral letter, a separate selected medical care fee applies at designated functional hospitals and regional medical support hospitals3)
Cost categoryApproximate amountInsurance coverage
Second-opinion clinic (self-pay)¥10,000–30,000 per visitNot covered
Referred visit (insured care)Initial consultation fee + test fees (30% copayment)Covered
First visit to a university hospital without a referral letter (selected medical care fee)¥7,000 or more (set by the facility) + insured-care portionSelected medical care fee not covered
Referral letter preparation feeAbout 750 yen (30% copay)Covered (medical information provision fee: 250 points)

Insurance coverage for amblyopia treatment glasses (reference)

Section titled “Insurance coverage for amblyopia treatment glasses (reference)”

Treatment glasses for children under 9 with amblyopia, strabismus, or after surgery for congenital cataract are covered by health insurance 4). The maximum benefit amount is 38,902 yen for lenses and 8,349 yen for frames, and the insurer pays this as medical expense reimbursement.

A second opinion is a way to make informed consent (providing enough information and obtaining consent) truly effective. It supports the process of comparing several explanations and choosing a treatment plan with confidence 1).

  • When patients choose a treatment plan based on the opinions of multiple specialists, they can make decisions with greater confidence
  • It has also been shown that many patients support the primary doctor’s plan after getting a second opinion, which can help strengthen trust 5)

A second opinion is not a sign of ‘distrust’ toward the primary doctor. Many doctors take patients’ wish for a second opinion positively, and there is a willingness to respect discussion among specialists 7). The second opinion often complements or supports the primary doctor’s judgment 8).

“Doctor shopping” refers to going from one doctor to another repeatedly without a clear purpose. It is fundamentally different from a second opinion.

  • The purpose of a second opinion is to hear an expert’s view on a specific diagnosis or treatment decision
  • It assumes there is a primary doctor, and after hearing the opinion, it is important to report back to the primary doctor and use it in the final decision
  • A one- or two-time consultation with a specialist for a clear purpose is respected as a second opinion

Tips for making good use of a second opinion

Section titled “Tips for making good use of a second opinion”
  • Prepare a list of questions in advance (limiting it to 3–5 items makes it easier to organize)
  • Bring a family member or someone you trust with you (to avoid missing information)
  • Take notes (so you can look back later)
  • Ask questions calmly and based on facts
  • After the second opinion, set aside time to make a calm decision
  • Don’t forget to report the results to your attending doctor

Example phrases for telling your attending doctor

Section titled “Example phrases for telling your attending doctor”
  • “I would like to understand the surgery a little better, so may I also get another specialist’s opinion? Could you please provide a referral letter?”
  • “I understand your explanation well. I would like to receive a second opinion just to be sure, so I can move forward with treatment with greater confidence.”
  1. 厚生労働省. 平成18年度診療報酬改定結果検証に係る調査 セカンドオピニオン外来実施医療機関の利用状況調査報告書. 2008. Available from: https://www.mhlw.go.jp/shingi/2008/07/dl/s0709-7a.pdf
  2. 日本眼科学会. 眼科専門医制度・専門医検索 [Internet]. Available from: https://www.nichigan.or.jp/
  3. 厚生労働省. 主な選定療養に係る報告状況. 2023. Available from: https://www.mhlw.go.jp/content/12404000/001117412.pdf
  4. 厚生労働省. 「小児弱視等の治療用眼鏡等に係る療養費の支給における留意事項について」の一部改正について. 保医発0918第2号. 2019. Available from: https://www.mhlw.go.jp/bunya/iryouhoken/iryouhoken13/dl/190919_06.pdf
  5. Tattersall MH, Dear RF, Jansen J, et al. Second opinions in oncology: the experiences of patients attending the Sydney Cancer Centre. Med J Aust. 2009;191(4):209-212.
  6. Hillen MA, Medendorp NM, Daams JG, et al. Patient-driven second opinions in oncology: a systematic review. Oncologist. 2017;22(10):1197-1211.
  7. 日本医師会. かかりつけ医機能とセカンドオピニオンに関する見解. 2015.
  8. Payne VL, Singh H, Meyer AN, et al. Patient-initiated second opinions: systematic review of characteristics and impact on diagnosis, treatment, and satisfaction. Mayo Clin Proc. 2014;89(5):687-696.

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